Section two
Survive the Daily Grind
The operational reality nobody prepares you for.
A solid process is needed to deal with reliably taking three dozen pills a day. That doesn't include medicines that come in liquid form or daily nebulizer treatments. It doesn't include the feeding tube formula, the wound care, the PT exercises, the vital sign logs.
Nobody hands you a manual. You build the system in real time, with what you have. This section is the manual I wish I'd had.
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A 20-minute audio summary of Daily Grind — updated as new articles are added.
Articles
The Pill Box Deserves Its Own Chapter
Three dozen medications. Three pharmacies. One caregiver in the middle of all of it.
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When Words Aren't Possible
The A-Z board. Hand signals. What to build before you need it. Communication systems for the ICU and beyond.
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ICU Delirium — What Nobody Told Us
It's common. It's terrifying. It's temporary. Here's what it looks like and how to respond.
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The Logistics Nobody Talks About
Where to stay during a long hospitalization. What to bring. How to survive the parking garage.
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Indoor Cameras and Home Safety
The tools that buy back peace of mind. Cameras, grab bars, supplies to have before you need them.
Coming soon
It's All About the Poop
The first hand signal we worked out in the ICU was thumbs up. Thumbs up didn't mean I'm okay. Thumbs up meant I pooped. This is the chapter nobody writes.
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The grind is real. So are the people who've been through it.
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“The other catastrophe on day one was the feeding tube connector was the wrong one. After an hour of customer support basically calling me an idiot, I convinced them that they really did provide us with the wrong tubes.”— Casey King, CaringBridge 2023